Lily had a follow-up appointment with Pedi Pulmonology today. Guess what - we don't have to go back to see them again for SIX MONTHS!!! What a huge weight lifted off my mind. There are, of course, some tests that have to be done in the meantime, but this feels like a big step.
Dr. Smith was thrilled to hear that Pedi Neurology is not worried at all about her sleep study from a few months ago. She said that it is very rare to get a report from Neuro saying that they are not concerned about a 24-weeker. However, even though the neurologist doesn't need to see a repeated sleep study, the pulmonologist still wants to repeat it in a couple months. They just want to be on the safe side and make sure she's improving over time. So we'll be doing that in September. We also talked about the swallow studies. The doctor said it's no big deal if we repeat the study and Lily still needs thickened liquids - she will eventually outgrow it. But we can't stop thickening without having a good swallow study because Lily's aspiration has always been silent. She doesn't cough or choke when she aspirates these trace amounts of liquid, so we would have no idea if she was damaging her lungs. So we'll be repeating the swallow study in July.
Overall, a good report - just the same old follow-up stuff.
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