ENT Consult

Lily visited an ENT specialist last Friday, following up from her sleep study which showed obstructive apnea. The doctor was great. He had reasons to back up his opinions, he was very nice, fun to talk to, and he even made Lily laugh. I really enjoyed visiting with this doctor, and that always makes a doctor visit better!

The doctor's opinion of Lily's situation almost made me laugh out loud. He said, "I'm sorry I can't give you a clearer answer, but it's just not black and white with Lily." Ha! That is pretty much the story of Lily's life. It is NEVER black and white. Not that there's anything wrong with that; it was just very funny to me when the doctor summed it all up that way.

He said he prefers to go by parents' reports of how the child sleeps, rather than the highly sensitive sleep study. While the study showed obstructive apnea, Lily does not snore very often; she doesn't snore loudly; her breathing is not labored; she can breathe through her nose with her mouth closed; she gets enough sleep overall and is well rested; the lower oxygen sats during her apnea episodes are not hindering her development. Without the sleep study results, there would be no reason to suspect that Lily had any kind of sleep apnea, which in the doctor's opinion means that she probably doesn't NEED treatment for it.

However, now that we have these test results, we're faced with the decision of whether or not to do anything. He asked me how aggressive we wanted to be in treating the apnea. (Treatment in Lily's case would mean removing her adenoids. She's too small to have her tonsils removed, and the doctor said he would not recommend anything more aggressive for Lily.) My response was, how do you even know it will help her? And he said, WE DON'T KNOW. And while I continued through the motions of the rest of the conversation, that was pretty much the clincher - If we're not sure that treatment would even help her, and we're also not even convinced that she really needs treatment in the first place, there's just no way that Lily is going to have surgery. That's ridiculous.

The doctor was sort of conflicted between recommending the surgery and not. His conclusion was that it was really up to us. It wouldn't hurt Lily to not have the surgery, and it wouldn't hurt her to have it. So we're not going to do it, and the doctor recommended that we just make a point to listen to Lily's breathing while she sleeps at least a couple times a week. (Like I don't already do that. The kid was on oxygen for over a year. I'm not sure that I'll ever NOT pay attention to the way she's breathing. This recommendation was almost as funny to me as "It's not black and white with Lily.")

I don't know if anyone else sees the humor in any of that, or if it's one of those things where you have to be there for it to be funny. Oh, well. At least you got the news about the doctor visit somewhere in this rambling blog entry!

Oh, and he also said that the obstructive apnea is highly UNlikely to be related in any way to Lily's swallowing troubles. He agrees with the pulmonologists that Lily will outgrow the swallowing problem, just give her time.

Fall Festival

We attended our MOMS Club Fall Festival this morning, and it was so much fun! Lily was very curious about the other kids' costumes. When we first arrived, she just stood in one spot and looked slowly around the room, staring at each kid. It was very funny. Then it seemed like she suddenly realized what some of the costumes were supposed to be (one was a puppy!), and she started following the kids around, pointing at their costumes. When I told her that Sean's costume was a lion, she said, "Roar!" right on cue. When we got home, she fell asleep at the table as soon as she was finished eating her lunch. I guess the party wore her out.

Some playgroup friends.

She had a hard time leaning over her spider belly to color, so this is how she improvised. She lost interest in coloring pretty quickly, though; there were too many kids running around.

Fall is here!

It is 12:36 p.m., and the temperature outside is 62 degrees. It's actually kinda cold if you go out there in short sleeves! I'm joking, I'm joking. I haven't completely forgotten what cold feels like, but I am sure there will be a very rude reminder the moment we step out of the airport in Omaha next month. Brrr.

Lily and I are gearing up for our big trip to Iowa in November. We will be flying a couple weeks ahead of Dusty, who will drive north; then we'll all drive home together at the end of our vacation. I've gotten some tips from friends who have flown with their little ones, and I'm trying not to go crazy thinking about what we need to pack. Don't worry, I'll procrastinate long enough that I won't be able to spend too much time being very worried about it. In the meantime, we've also been thinking about Christmas. By the time we return from Iowa, it will be time to set up the Christmas tree!

The cooler weather has been making me want to bake, everything from muffins and rolls to dinners and desserts. This morning Lily helped me make banana cookies. And of course Lily had to eat a banana while we were mixing up the dough; cookie baking is tough work, you know. She is big enough now to be able to stand on a chair to help at the kitchen counter, and you can just tell that she thinks she's such a big girl getting to do that. It's so much fun.

Lily had a Tiny Tots follow-up in the Medical Center on Monday. It was the last Tiny Tots checkup in her series, and it included a complete developmental evaluation. The doctor played games with Lily for about two and a half hours, evaluating her cognitive responses to the activities. It was really interesting, and I am so glad we chose to participate in this program. The vast majority of babies born prior to 25 weeks gestation will have some kind of cognitive impairment or delay, so it was very reassuring to have the evaluation and talk to the doctor. Lily doesn't fall into the majority... She has no impairment or delay; she is doing everything she should be doing at her age. What a miracle! AND, as if that wasn't enough good news for one day, we also learned at that appointment that Lily has officially hit the growth chart. The real growth chart for her actual age, NOT adjusted for prematurity. I can't remember the actual weight, but she was right at the 5th percentile; for height, she's between the 10th and 25th. She's still short, and she's still tiny. But she met her goal of hitting the chart by the time she turns two!

Then on Tuesday I had a doctor's appointment for myself. The doctor has ordered some labs and tests, basically just to be sure my body is still doing ok with my high blood pressure. I've had all of these tests before, but they need to be repeated every once in awhile. We don't expect to find anything unusual. Hopefully we can get everything done before we go to Iowa, so it will all be out of the way.

Today we get to stay home all day. Lily is helping me do laundry (I mean, Lily's unfolding everything I fold), we're cleaning the house, frosting the cookies, and just spending some fun time at home. While I don't like to clean, I do love days like this... Spending time at home with Lily is such a blessing.

Pumpkin Patch

This was our first visit to the pumpkin patch this year. It's just a few minutes down the road, so we'll be going again soon.

Zoo

Lily and I went to the zoo for a couple hours last Monday. It was really fun to see how Lily has changed in just the last few months since the last time she visited a zoo. This time she was more interested in saying the names of the animals than before, and she was able to do some of the fun things designed for kids. I would say that her favorites this time were the panther and the birds.

Sunday Fun

We had a great day on Sunday. I made blueberry muffins from scratch for breakfast, then we went to church. After church we had a quick lunch and then Dusty went kayaking with a friend while Lily and I went to the Pumpkin Patch Party at the Enchanted Forest, a local nursery. They had a petting zoo (which Lily loved this time! She has been scared in petting zoos before), pumpkin painting, balloons, and more. Later in the afternoon, Dusty took Lily to a friend's birthday party at Jumpin Jacks, while I went to our Meal Ministry pot luck. We had a small group of about 1o people, which was great because it allowed all of us to talk together. We had a guest speaker who shared an inspiring message with the group, and the food was fabulous!

I don't know what the problem is with this slideshow, but if you click "View All Images," it will take you to the slideshow on the Slide website. Sorry.

Children's Museum

I had no idea that the Children's Museum has free Family Nights every Thursday! We finally took the time to go visit the museum, and it was a blast. Lily loved every bit of it, whether she knew what the exhibits were about or not. Some things were age-appropriate, and others were designed for older kids. Here are a few pictures.